People learning through genetic testing that they might be susceptible to devastating diseases would not also have to worry about losing their jobs or their health insurance under anti-discrimination legislation the US Senate passed on Thursday.
The 95-0 Senate vote sends the Genetic Information Nondiscrimination Act back to the House of Representatives, which could approve it early next week. US President George W. Bush supports the legislation.
The bill, described by Senator Edward Kennedy as “the first major new civil rights bill of the new century,” would bar health insurance companies from using genetic information to set premiums or determine enrollment eligibility. Similarly, employers could not use genetic information in hiring, firing or promotion decisions.
“For the first time we act to prevent discrimination before it has taken firm hold and that’s why this legislation is unique and groundbreaking,” said Senator Olympia Snowe, a Republican who sponsored the Senate bill.
There are more than 1,100 genetic tests available today, she said, but these are “absolutely useless” if fear of discrimination discourages people from taking tests or participating in clinical trials.
Genetic testing could lead to early, lifesaving therapy for a wide range of diseases with hereditary links such as breast and prostate cancer, diabetes, heart disease and Parkinson’s disease.
“But right now the ability to realize those goals is somewhat limited” because of patients’ fears that the information will be used against them, said David Herrington, a professor of cardiology at Wake Forest University and spokesman on genetic issues for the American Heart Association.
The legislation “will help them both be more willing to participate in research and avail themselves of the benefits of genetic testing,” he said.
Congressional efforts to set federal standards to protect people from genetic discrimination go back more than a decade, to a time when there were only a small number of genetic tests. But now, with the mapping of the human genome in 2003, people have access to far more information about their hereditary disposition to such crippling afflictions as cystic fibrosis and Huntington’s disease.
Bill sponsors said that has increased the likelihood that a prospective health insurance company or employer will reject a person because of concerns that person will suffer a costly disease in the future.
Archeologists in Peru on Thursday said they found the 5,000-year-old remains of a noblewoman at the sacred city of Caral, revealing the important role played by women in the oldest center of civilization in the Americas. “What has been discovered corresponds to a woman who apparently had elevated status, an elite woman,” archeologist David Palomino said. The mummy was found in Aspero, a sacred site within the city of Caral that was a garbage dump for more than 30 years until becoming an archeological site in the 1990s. Palomino said the carefully preserved remains, dating to 3,000BC, contained skin, part of the
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North Korean leader Kim Jong-un has unveiled a new naval destroyer, claiming it as a significant advancement toward his goal of expanding the operational range and preemptive strike capabilities of his nuclear-armed military, state media said yesterday. North Korea’s state-run Korean Central News Agency (KCNA) said Kim attended the launching ceremony for the 5,000-tonne warship on Friday at the western port of Nampo. Kim framed the arms buildup as a response to perceived threats from the US and its allies in Asia, who have been expanding joint military exercises amid rising tensions over the North’s nuclear program. He added that the acquisition