At its 15th session, which ended at the beginning of last month, the UN Human Rights Council adopted a resolution encouraging governments to eliminate discrimination against people affected by leprosy — and their family members. As the WHO’s goodwill ambassador for leprosy elimination, I have long campaigned for this outcome.
Leprosy is one of the world’s oldest diseases. It has a physical dimension, but also social and psychological components. For much of its long history there was no known cure. It was only in the latter part of the 20th century that a truly effective chemotherapy became available. Since the introduction of multidrug therapy in the early 1980s, about 16 million people around the world have been cured. In virtually every country in the world, leprosy is no longer regarded as a public-health problem.
Caught early and addressed promptly, leprosy need leave no trace. Only when the disease goes untreated does the damage caused to the peripheral nerves lead to loss of sensation and invite ulceration and wounds. Unchecked, leprosy disfigures and can result in permanent disability.
Down the ages, the appearance of those with the disease and the absence of a known cure contributed to the fear that it caused — and thus to the stigmatization of its sufferers. Even today, many mistaken notions about leprosy persist. The stigma surrounding the disease remains hard to dispel and results in discriminatory attitudes and practices that continue to blight the lives of millions of people.
However, the facts about leprosy are hardly so odious. The disease is caused by a bacillus called Myobacterium leprae, first identified in 1873 by G.H. Armauer Hansen. Leprosy is thus an infectious disease; it is not hereditary, let alone a divine punishment. Transmission is believed to be airborne, through close and frequent contact with an infected, untreated person. However, leprosy is very hard to develop; most people have a built-in immunity to it and have nothing to fear.
It is important to emphasize, too, that leprosy can be cured at any time. The first dose of MDT kills 99.9 percent of the bacteria that cause leprosy, rendering the person no longer infectious. However, if treatment has been delayed, the patient may be left with recurring ulcers and permanent damage.
Last year, there were less than 250,000 new cases of leprosy reported in the world, more than half of them in India. Brazil and Indonesia also contribute a significant number of new cases. Compared to the numbers who fall ill with diseases, such as HIV/AIDS, malaria and tuberculosis, however, leprosy almost pales into insignificance.
However, what is not acceptable is the way that people with leprosy, those cured of it and even their family members continue to be discriminated against on the basis of fears, myths and outdated notions about a disease that is today completely curable.
The principles and guidelines that were unanimously adopted by the Human Rights Council convey the nature and scale of the problem. In affirming the rights to which people affected by leprosy and their family members are entitled, the principles and guidelines reveal the extent of discrimination and the forms that it has taken.
For example, the principles and guidelines note that people affected by leprosy, including sufferers’ family members, are entitled to the same rights as everyone else with respect to marriage, family and parenthood. So leprosy should not be grounds for denying anyone the right to marry or for divorce; nor should it constitute grounds for separating a child from his or her parents.
People who have been infected with leprosy also are entitled to the same rights as everyone else with respect to full citizenship and obtaining identify documents. They have the right to serve the public on an equal basis with others, including the right to stand for elections and to hold office at all levels of government.
Likewise, they have the right to work and be treated on an equal basis with others vis-a-vis recruitment, hiring, promotion and salary. They are not to be denied admission to or expelled from schools or training programs on the grounds of leprosy.
In other words, people should not be discriminated against on the grounds of having or having had leprosy — or, indeed, any disease.
The landmark resolution adopted by the UN Human Rights Council encourages governments to give due consideration to the principles and guidelines in formulating policies. I hope that governments will do more than that. I hope that they will take them to heart and address once and for all the long-standing injustices that for too long have pushed too many people with leprosy to the margins of society.
Yohei Sasakawa is chairman of the Nippon Foundation, the WHO’s goodwill ambassador for leprosy elimination and Japan’s goodwill ambassador for the human rights of people affected by leprosy.
COPYRIGHT: PROJECT SYNDICATE
A series of strong earthquakes in Hualien County not only caused severe damage in Taiwan, but also revealed that China’s power has permeated everywhere. A Taiwanese woman posted on the Internet that she found clips of the earthquake — which were recorded by the security camera in her home — on the Chinese social media platform Xiaohongshu. It is spine-chilling that the problem might be because the security camera was manufactured in China. China has widely collected information, infringed upon public privacy and raised information security threats through various social media platforms, as well as telecommunication and security equipment. Several former TikTok employees revealed
Two sets of economic data released last week by the Directorate-General of Budget, Accounting and Statistics (DGBAS) have drawn mixed reactions from the public: One on the nation’s economic performance in the first quarter of the year and the other on Taiwan’s household wealth distribution in 2021. GDP growth for the first quarter was faster than expected, at 6.51 percent year-on-year, an acceleration from the previous quarter’s 4.93 percent and higher than the agency’s February estimate of 5.92 percent. It was also the highest growth since the second quarter of 2021, when the economy expanded 8.07 percent, DGBAS data showed. The growth
At the same time as more than 30 military aircraft were detected near Taiwan — one of the highest daily incursions this year — with some flying as close as 37 nautical miles (69kms) from the northern city of Keelung, China announced a limited and selected relaxation of restrictions on Taiwanese agricultural exports and tourism, upon receiving a Chinese Nationalist Party (KMT) delegation led by KMT legislative caucus whip Fu Kun-chi (傅崑萁). This demonstrates the two-faced gimmick of China’s “united front” strategy. Despite the strongest earthquake to hit the nation in 25 years striking Hualien on April 3, which caused
In the 2022 book Danger Zone: The Coming Conflict with China, academics Hal Brands and Michael Beckley warned, against conventional wisdom, that it was not a rising China that the US and its allies had to fear, but a declining China. This is because “peaking powers” — nations at the peak of their relative power and staring over the precipice of decline — are particularly dangerous, as they might believe they only have a narrow window of opportunity to grab what they can before decline sets in, they said. The tailwinds that propelled China’s spectacular economic rise over the past