Josh Swiller was 22 and profoundly deaf when he applied to the Peace Corps in search of adventure. And indeed, adventure he found. His experiences in Zambia are eloquently recounted in his hard-to-put-down memoir of deafness and Africa, The Unheard (Holt, 2007).
But how could someone so hard of hearing get into the Peace Corps, let alone learn a foreign language and communicate in it? Swiller told me he had no problem with the interview, which was conducted one-on-one in a quiet room, enabling him to hear and to read lips. Through the devoted efforts of an audiologist and his mother, he could speak nearly as well as a normal-hearing person. And he did not have a problem learning the language of Zambia.
“I was so used to paying close attention when other people spoke,” Swiller recalled in an interview. “I was used to asking people to repeat themselves.”
He added: “Being deaf and having three brothers, one of whom is also deaf, I learned how to communicate without language. I could conduct conversations when I understood only a few words in each sentence.”
That was remarkable in itself. But far more remarkable is that the interview with me was conducted over the telephone, something Swiller, 37, could not have done three years ago. In 2005, he and his brother underwent life-changing surgery, substituting a cochlear implant for the hearing aids that were no longer working for them.
“Thirty years of amplified sound had worn out our ears,” he explained. “In most people with sensorineural hearing loss, their hearing gets worse with time and they need stronger and stronger amplification. We started getting terrible headaches all the time, and I finally had to stop using the aids altogether.”
‘It’s a miracle’
During those two soundless years, Swiller, who was fluent in sign language, attended the Lexington School for the Deaf, in Queens, New York, and the League for the Hard of Hearing, in Manhattan, and earned a master’s degree in social work. He now works part-time as a hospice social worker, a job he could not have held before the implant because it involves talking to sick people and lots of time on the telephone. His brother, now married and a real estate entrepreneur, does much of his work through conference calls.
“The implant opened up a whole new world for me,” a world that now includes a normal-hearing girlfriend who mumbles, Swiller said, laughing.
With the implant, Swiller’s hearing went from 25 percent to 100 percent. The deafness inherited by Swiller, his brother and one of their first cousins is caused by an autosomal recessive mutation in a gene called connexion 26, the most common cause of sensorineural deafness in children.
Sensorineural hearing loss affects one to three of every thousand children born in developed countries, according to a report in the Dec. 6 issue of The New England Journal of Medicine. Hearing aids are helpful when the deficit is mild to moderate, but are less effective or ineffective when hearing loss is severe.
Candidates for cochlear implants have severe sensorineural hearing loss in both ears but still have a healthy auditory nerve. A tiny microphone worn behind the ear picks up and amplifies noises filtered through a sound processor that gives priority to speech. The resulting signals are sent electromagnetically to a receiver and stimulator implanted under the skin. The signals are converted to electrical impulses and sent to the brain via the auditory nerve.
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