Sat, Jul 20, 2019 - Page 9 News List

How to survive false reports about cancer

The Internet is awash with advertisements for costly but bogus treatments, while claims abound that scientists are suppressing a cure for cancer

By David Robert Grimes  /  The Observer

Illustration: Kevin Sheu

For Eileen O’Sullivan, being diagnosed with breast cancer in 2013 was the catalyst for a deluge of distinctly unscientific and frequently dangerous advice. An investment manager with a analytical mind, she began seeking information to better understand her potentially life-altering condition.

However, from the moment Eileen starting searching online, misinformation was unavoidable.

“This is when all the suggestions start rolling in,” she says. “Before diagnosis, I had never heard of crank treatments for cancer: herbs, supplements, diets, juicing, clean eating, homeopathy, essential oils, nor adverts for overseas alternative cancer clinics. I certainly didn’t go looking for them, but I got endless prompts based on keywords such as breast cancer.”

“I was also inundated with relatives and friends coming out with crackpot therapies — and even from other patients in chemo wards and waiting rooms,” she says.

As a cancer researcher deeply involved in science outreach, I can attest that few subjects provoke quite the emotional response that cancer does.

There is not a family in the world untouched by the disease, and the word itself is enough to induce a sense of fear in even the hardiest among us. Cancer is oppressive and all-pervasive: Half of us alive today will experience a direct brush with it.

However, despite its ubiquity, it remains poorly understood and falsehoods around it can thrive.

ONLINE CLAIMS

Online, dubious claims about cancer are rife, from outright “cures” to assertions of a conspiracy to suppress “the truth” about it. In 2016, more than half of the 20 most shared cancer articles on Facebook consisted of medically discredited claims. This goes far beyond Facebook — the Wall Street Journal recently revealed that YouTube was hosting accounts with thousands of subscribers that promoted bogus cancer treatments.

O’Sullivan’s skepticism gave her some immunity to the lure of empty promises, but having lost her mother to breast cancer, “fear left me more vulnerable to pseudoscience than I would care to admit,” she says.

She is now a passionate patient advocate, steering others away from damaging falsehoods — a problem she sees as unrelenting.

This grim assessment chimes with the observations made by Robert O’Connor of the Irish Cancer Society: “Practically all patients are exposed to misinformation, [coming] from well-meaning, but misinformed loved ones to a plethora of exploitative and profiteering sources on social media.”

A quick Web search reveals ostensible treatments ranging from the vaguely scientific-sounding to the profoundly esoteric. The US Food and Drug Administration’s (FDA) non-exhaustive list of debunked claims numbers more than 187, while Wikipedia’s list of bogus cures run from “energy-based” to “spiritual healing.” Other claims involve hyperbaric oxygen therapy, cannabis oil, shark cartilage, ketogenic diets and baking soda.

There is increasing concern that such fictions risk eclipsing reputable information. Macmillan Cancer Support recently appointed a nurse specifically to debunk online stories, prompting The Lancet Oncology to comment: “How has society got to this point, where unproven interventions are being chosen in preference to evidence-based, effective treatments? Unfortunately, disinformation and — frankly — lies are widely propagated and with the same magnitude as verified evidence.”

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